Need assistance with your journey?
We are here to listen and support you through your experiences with pineal cysts. Your voice matters, and we want to help you share it.
What are pineal cysts and their symptoms?
Pineal cysts are fluid-filled sacs in the pineal gland, often asymptomatic. However, some individuals may experience headaches, vision problems, delusions, seizure like activity, hormonal imbalances or other horrific symptoms, leading to significant distress and requiring medical attention.
How are symptomatic pineal cysts treated?
Treatment for symptomatic pineal cysts may involve monitoring, medication for symptoms, or surgical intervention if necessary. It’s crucial to consult with a specialist who understands the complexities of this condition. Unfortunately, there are only 4 on the planet that commonly treat pineal cysts in adults. We are here to help change that.
What should I do if I feel dismissed by my doctor?
If you feel dismissed by your doctor regarding your pineal cyst symptoms, seek a second opinion from a neurosurgeon experienced in treating this condition. Document your symptoms and advocate for your health to ensure proper care. Reach out to us and other support groups to let us know how we can best be of service to you.
Are there support groups for pineal cyst patients?
Yes, there are various online and local support groups for individuals with pineal cysts. These groups provide a platform for sharing experiences, gaining insights, and finding emotional support from others facing similar challenges. We are members of a wonderful Facebook group called “Pineal Gland Cysts & Tumors (Public)” and highly recommend it.
What are the long-term effects of untreated pineal cysts?
Untreated symptomatic pineal cysts can lead to persistent symptoms such as chronic headaches, vision issues, delusions, seizure like episodes, hormonal disturbances and many other horrific and debilitating issues.
How can I share my story?
You can share your success story by contacting us through our website’s contact form or emailing us at pineal.stories@gmail.com