🌟 Help Raise Awareness and Fight for Pineal Cyst Sufferers

🎯 The Mission

We are raising funds to amplify the voices of people suffering from symptomatic pineal cysts — a condition that is often misunderstood, minimized, or dismissed altogether by the medical community.

Many patients endure life-altering symptoms, only to be told their MRI shows a “benign incidental finding.” But those living with the daily effects of pineal cysts know better. It’s time their experiences were recognized and acted upon.

🧠 The Reality of Pineal Cysts

Though pineal cysts are often labeled as “common and harmless,” a subset of patients experience severe, chronic symptoms that interfere with work, relationships, and basic functioning.

Reported symptoms include:

• Debilitating headaches
• Blurred or double vision
• Balance problems and dizziness
• Nausea and vomiting
• Brain fog and memory loss
• Sleep disruption and extreme fatigue
• Anxiety, depression, and mood changes
• In rare cases, delusions or altered perception
• Difficulty swallowing/weight loss
• Seizure like activity
• Personality changes

These are not just coincidences — they are lived experiences.

💵 How Your Donation Helps

Funds will power a strategic advocacy campaign focused on awareness, education, and institutional change:

📰 Media & Public Awareness

• Produce patient story videos and interviews
• Work with journalists and podcasters to expose the gap in care
• Launch a dedicated awareness website and materials

🧑‍⚕️ Institutional Pressure

• Develop physician briefing packets and case studies
• Submit organized appeals to tumor boards and surgical committees
• Connect with neurosurgical departments open to evolving research

🎯 Targeted Campaigning

• Focus outreach on hospitals with top neurosurgery programs
• Sponsor letter-writing campaigns and petitions
• Map out surgeon and institution responsiveness

🧠 Education & Advocacy

• Host webinars for patients and professionals
• Publish symptom guides for primary care and neurology fields
• Offer structured advocacy toolkits for patients to use locally

❤️ Why We Need You

The institutions meant to care for patients are too often failing them. This campaign is powered by patients, caregivers, and advocates — not big organizations.

We believe no one should be told their suffering is imaginary just because a radiology report says “benign.”

Your support can help:

• Break the silence
• Fund outreach that leads to real clinical change
• Bring hope to a population that feels forgotten

💬 FAQ: Questions You Might Have

❓ Are pineal cysts really that serious?

Some are asymptomatic. But for many, they cause disabling neurological and psychiatric symptoms. Our focus is on those symptomatic cases, which are too often dismissed despite consistent patient reports and case-based research.

❓ What does “delusions” mean in this context?

Rarely, patients report disconnected thoughts, altered perception, or paranoia that can’t be explained by other causes.

❓ Can surgery help?

Yes, for most symptomatic cases, surgery provides a near complete reversal of symptoms. Patients with documented hydrocephalus, tectal compression, or clearly symptomatic cysts have seen amazing improvements after surgical intervention. Unfortunately, many are denied even an evaluation. This needs to change.

❓ Why not leave it to doctors?

Because many doctors still rely on outdated views of this condition. We are working with forward-thinking physicians to promote updated data, but it takes public pressure and the lived stories of real patients to shift medical consensus.

❓ Where does the money actually go?

We’re committed to transparency. Funds will support:

• Media production
• Platform hosting
• Consulting fees for advocacy outreach
• Printed materials and postage
• Patient education tools
• Outreach travel when necessary

Detailed breakdowns will be posted with each major milestone.

🌱 Your Donation Can Change Lives

Every dollar raised brings us closer to awareness, answers, and action. Whether you donate or simply share this page — thank you. You’re helping bring visibility, credibility, and hope to those who need it most.