Reevaluating Pineal Cysts: A Call to Action
Join our mission to raise awareness and advocate for better treatment options for symptomatic pineal cysts affecting millions globally.
Pineal Cysts: A Call to Action
Join our podcast as we explore the urgent need for a reevaluation of how the medical community addresses symptomatic pineal cysts. Together, we can raise awareness and advocate for better treatment options.
Real Voices, Real Stories
Join the Movement for Pineal Cyst Awareness
Help us advocate for better treatment and recognition of symptomatic pineal cysts.
How will my donation be used?
Funds will power a strategic advocacy campaign focused on awareness, education, and institutional change:
📰 Media & Public Awareness
- Produce a patient story podcast
- Work with journalists and other podcasters to expose the gap in care
- Launch a dedicated awareness website and materials
🧑⚕️ Institutional Pressure
- Develop physician briefing packets and case studies
- Submit organized appeals to tumor boards and surgical committees
- Connect with neurosurgical departments open to evolving research
🎯 Targeted Campaigning
- Focus outreach on hospitals with top neurosurgery programs
- Sponsor letter-writing campaigns and petitions
- Map out surgeon and institution responsiveness
🧠 Education & Advocacy
- Offer structured advocacy toolkits for patients to use locally
- Host webinars for patients and professionals
- Publish symptom guides for primary care and neurology fields
How do I join you to tell my pineal cyst story?
We want to hear from you! Please reach out to us at pineal.stories@gmail.com
Are pineal cysts really that significant?
Some are asymptomatic. But for some, they cause disabling neurological and psychiatric symptoms. Our focus is on those symptomatic cases, which are too often dismissed despite consistent patient reports and case-based research.
Why not leave it to the doctors?
Because many doctors still rely on outdated views of this condition. We are working with forward-thinking physicians to promote updated data, but it takes public pressure and storytelling to shift medical consensus.
